Epilepsy…… That’s a word I hate. I have had seizures now for
about 13 years and they have changed my life. Gosh when you say that out loud
you realise how much it really has changed your life.
I was at university and had a fall on a wet dancefloor
banging the back of my head and falling on my spine. That was the start of it
the have I wet myself questions, has anyone seen me etc everything someone with
seizures go through.
Initially they didn’t know what was wrong, I had one episode
as the quacks like to call them and then nothing for months, all I was able to
tell them was how I felt afterwards and the circumstances I woke in. they
scheduled me for an eeg which basically they set you in this wee dark room and
have your brain monitored to see for activity. I had this done in Oxford and I remember
my bestie Nikki coming with me cause the John Radcliffe is a really old
building and I remember the smell and everything. The test came back
inconclusive. I had no more episodes for months then in the March I had one and
they decided to put me on medication. I remember thinking well if there is
nothing wrong why throw medication down my throat, I was very angry at the time
but I know now why they done it. So nothing over the summer then in September I
met my amazing hubby as he joined our uni and stayed in the halls I was now
looking after. We started dating on Halloween night basically and within 2
weeks he was in the hospital with me for a brain MRI. Again they couldn’t tell
but they told me that 95% of epileptics have a normal MRI
I started to feel was there anything actually wrong, was it
all in my head, was there something mentally wrong. I fell into a deep depression
and went to a very low place in my life. The day I had my first seizure in
front of Scott is something I can’t massively remember but he was amazing, he
took it all in his stride, got me washed, the bed changed and just went back to
sleep. We decided to move back to
Ireland as things were just getting too bad, the injury from my fall on my back
was getting worse and I was diagnosed with fibromyalgia.
I had video telemetry for 5 days in the royal Victoria Belfast
and nothing not one iota of a seizure, the consultant thinks I was willing it
to come on so much that adrenaline basically kept it away. I had one in the
carpark of the hospital!! How ironic is that and just typically me!
So years on and countless seizures, I am sitting here
writing this with a nice big and sore carpet burn on my face another little
seizure injury, you can see that gorgeousness below! Goodness there have been a few, broken wrist a couple of times,
carpet burns on face, bruised ribs.
Epilepsy has taken so much of my life but it has given me a
sense of thankfulness, especially for my mum dad and scott. They treat me like I
am normal and when mum was alive we used to be able to joke about it. Dad has
seen me in states that he should never have to see me in, but yet its just
another day to him. Scott has dealt with me fitting in the biscuit aisle in
sainsburys and in the car not long after he passed his test.
If you have epilepsy and are reading this I want to tell you
you are normal we just are a little differently wired but that makes us unique.
Never feel you are any less than a “normal” person, as a friend of mine once
said we are in the epilepsy possee and its an exclusive members only club.
If you have just came across this post or you are a friend
of mine, just know that I cant control this and the best way to deal with it is
not to be scared incase it happens with you,and if I do pee myself never worry
a washing machine and shower will soon sort that out.
I think what I am trying to get through with this post is
that yes epilepsy is crap and yes it has changed my life but I have learbed to
deal with it and if I fit outside I couldn’t care less now, let people look and
stare its their ignorance not mine.
Epilepsy yes I do hate you but you wont beat me, unless I fit
in front of the Ulster Rugby Team or someone really famous then we will fall
out!!
Love to all you preeners, you all make me strong
xxxx
I've been dealing with epilepsy since october, and reading stories like this gives me hope and strength to carry on. Thanks for sharing! x
ReplyDeleteChantal
DeleteThanks loads for the comment!
You are strong and you will fight this come say hey on Facebook,Twitter and instagram and I am always here if you need to rant
Keep smiling
Ali xxx
That must have been very scary to experience, knowing something was wrong but not what. Sorry to hear you have epilepsy, it must be such a life changing diagnosis
ReplyDeleteFibrogeek.co.uk
It definitely was scary, it still is if I am honest x
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